Neena Nizar

Neena Nizar

Executive Director of The Jansen's Foundation Patient and mother to two superheroes with Jansen's Metaphyseal Chondrodysplasia. Working on a treatment... | Omaha, Nebraska, United States

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Work Experience

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Director Patient Advocacy Strategy - Center of Rare Disease

Mon May 01 2023 00:00:00 GMT+0000 (Coordinated Universal Time) — Present

Metropolitan Community College

Project Coordinator President's Office

Wed Sep 01 2021 00:00:00 GMT+0000 (Coordinated Universal Time) — Mon May 01 2023 00:00:00 GMT+0000 (Coordinated Universal Time)

Rare Advocacy Movement

Advocate in the Spotlight

Thu Mar 01 2018 00:00:00 GMT+0000 (Coordinated Universal Time) — Fri Nov 01 2019 00:00:00 GMT+0000 (Coordinated Universal Time)

National Organization For Rare Disorders

State Volunteer For Nebraska

Thu Mar 01 2018 00:00:00 GMT+0000 (Coordinated Universal Time) — Fri Nov 01 2019 00:00:00 GMT+0000 (Coordinated Universal Time)

Global Genes

Foundation Alliance Council Member

Thu Feb 01 2018 00:00:00 GMT+0000 (Coordinated Universal Time) — Fri Nov 01 2019 00:00:00 GMT+0000 (Coordinated Universal Time)

The Jansens Foundation

Founder & Executive Director

Wed Feb 01 2017 00:00:00 GMT+0000 (Coordinated Universal Time) — Present

Metropolitan Community College

Training and Assessment Coordinator

Tue Dec 01 2015 00:00:00 GMT+0000 (Coordinated Universal Time) — Fri Jan 01 2021 00:00:00 GMT+0000 (Coordinated Universal Time)

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